Would you like to help raise research funds and awareness for Friedreich’s Ataxia? If you live in the Illinois area you still have just enough time to get down to Channahon Central Park, 24856 W. Eames St., to register for today’s fundraising cycle ride… Ride Ataxia. You’ve missed the deadline for the longer versions of the ride, but you can still make it for the four-mile ride, which begins at 10am. Registration is $40.
Ataxia is a debilitating, life-shortening disease for which there is no known cure. It affects children and young adults – around 15,000 people worldwide. It causes scoliosis, loss of coordination (ataxia) in the arms and legs, fatigue, muscle loss, vision impairment, hearing loss, slurred speech and heart complications.
Two of the volunteers at today’s event are themselves sufferers from the condition – Emily Young, 16, of Saybrook, and Nicole Kramer, 18, of Villa Park. The Chicago teens maintain a positive outlook, have great school grades, and are hoping to go on to college. By participating today they hope to help others who have the same rare neurological condition.
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